Thursday 4 April 2013
So last night was OK(ish) the rash on my back
and chest was really sore and it spread up to my neck too. Other than the rash and still having ear pain I'm feeling aright. Which feels weird.
I did however have to come to work half an hour
later than usual as I woke up with really stiff hands, it was agony bending my
fingers so I just stayed in bed a bit longer.
If I’m honest with myself I shouldn’t have come in today at all. I’m done for the week. I’m here, but I’m not REALLY
here. Here in body but not in mind.
I was being a bit pathetic last night. Sami was at football so I was in on my own
feeling a bit sorry for myself. I wanted
some sympathy and I’d already got some off my Mum so I texted my Dad saying, “Look
at my rash – it’s so sore.” Dad replied, ‘Oh dear, looks very sore. Poor baby
xxxx.’
Worked a treat – ya can’t beat a bit of ‘Daddy
Sympathy’.
I have
some exciting news for you –
I have been asked to contribute my story about
living with lupus to a book for a Lupus charity in Ireland. They read my blog and asked if I’d like to do
it so obviously I said yes. Well I said,
‘Hell yes!’
The purpose of me writing this blog was to raise
awareness for this shite disease so to be able to put my story in a book, well
that’s amazing. I really want to help
others with this illness and I want to show people that although it’s shite you
can still live a good life. Life is what
you make of it after all.
I’m hoping I continue to feel alright into the
weekend…It would be so nice to actually enjoy it rather than wallowing in self
pity, lying in bed crying like a d ouche.
Here’s hoping! Cheers to the feakin’ weekend!
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