29 Apr 2013

Ask me anything...

Monday 29 April 2013

Hiiii! I'm writing this at work today and I'm feeling OK.  Well apart from some pain in my elbows....It's actually quite bad. I think I'm gonna have to give in and take some pain killers (which I hardly ever take).  Sometimes the pain lupus unleashes is shocking. At least it's just my elbows and not all over my body.

I had some BAD night sweats last night, when I got up I had sweat all over my body especially behind my knees and my neck - so icky.  I HATE it.  I'm a real clean-freak so to wake up sweaty 6 days out of 7 is not fun.

My legs are aching but  I think its more down to all the booty shaking on Saturday night!  It's not like Lupus aches, its like I've done a work out aches which I don't mind.  Those aches are good aches.  Defo the sign of a good night out.

Anyway I just came across this and thought it was interesting so wanted to share...

It's a link to a list of celebrities who have Lupus/are linked to Lupus....It's quite interesting because before I had Lupus I would never have known.

So I thought I'd take this opportunity to say that if anyone has any questions they'd like to ask me please feel free to email me/leave a comment below/contact me on facebook and I'd be happy to answer....This blog is all about raising awareness and helping others in a similar situation to mine so please feel free to ask me anything.

Please also take a look at my other pages (in the tab at the top) outlining what Lupus is (very brief) and my story so far...

Thanks - I hope you all have a nice (& pain free) day xxx 


  1. Hi Fay,

    Awesome blog! It's comforting to know there are others out there dealing with this.
    Before this blog how did you explain your illness to others? I find it hard to explain & feel that people do not really understand what I am dealing with here.

  2. Hi -

    Thank you! =0) TO be honest, I felt the same. Since doing this blog people have said to me (even close friends) that they didn't really know how bad it was for me. When I was first diagnosed I asked my friends and family to go on-line and read about it...and I also explained the symptoms and that during a flare they are a lot worse. I think if people care about you they will do their best to learn about it and understand.

    I think because we don't look unwell it makes it difficult for people to comprehend how ill we actually are...Just tell people how it is. Don't pretend to be ok when you're not and people will soon realise. Tell people it's important for you that they learn about your illness and hopefully that will help. And don't be afraid to ask for help!