24 Apr 2013

The little things in life...

I walked home from work yesterday which was nice - I do this as often as I can as its a way of getting a little exercise without over-exerting myself.  The weather was beautiful and I saw this pretty tree - I had to take a pic....It's the little things in life you know....


 

I REALLY miss exercising - I used to be a proper little gym bunny (with a toned body and a 25 inch waist to match) I used to go at least 3 times a week.  I can't imagine doing all the exercise I used to do now.  I would DIE.  I'm definitely not as fit as I used to be but I just can't physically do it any more.  Even after walking home I'm a mess, ready for my bed.  But I push myself to do it because they say gentle exercise can help with the fatigue and also I don't want my muscles to waste away, plus I'd like to stay within the recommended BMI because as someone with Lupus you are at high risk of developing heart disease so keeping my weight down will help to prevent this.  Not easy when steroids give you the appetite of a beast and your joint pain/fatigue gets in the way of a work out!  Oh well what can ya do? 


 

So I've been feeling ok this week (apart from my gammy eye) I've been tired and having headaches but I haven't been stuck in bed like I was last week.  We had a cheeky beer at lunch time today....me being me took a pic of myself or a 'selfie' as I understand they are now called...





It's a lovely day in London today so my colleague and I had our beers outside (I was out there for a maximum of ten mins) and look what the sun did to me....

Bloody Lupus.  I've never really been affected by the sun so this was quite surprising to me.  I'll have to make sure I make sun-cream part of my daily routine from now on.  It's so weird that the sun can trigger lupus symptoms and cause skin rashes.  What a weird illness this is! Oh well as long as I can still have a beer then its not ALL terrible



Maybe I should go out like this...



Talking of beer, I'm off to a BBQ this evening - first one of the year.  I'm really looking forward to it and to socialising - this Lupus bitch is annoying for sociable people! When I'm in agony or so tired I can't even think of my own name it doesn't really make for a sociable Faye and as a very out-going person this can be really upsetting so when I'm feeling good I try to make the most of it and today I will! Yey! I can be bothered to talk to people! And I'm not in enough pain to warrant me an invalid! Yeyyyyy!


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