I'm back at work
today and feeling OK. Surprisingly. That's the weird thing about
this Lupus malarkey is one day you're bed-bound and the next you can
jump around like a gymnast. Well maybe not quite a gymnast but y'know a
normal person.
Yesterday was tough
though. I was in a BAD way. I was in so much pain and I couldn't even string a sentence together, everything was just on the tip of my tongue - so annoying! It was really bugging me, all my words were
coming out jumbled or I just couldn't find the word I wanted. Bloody Lupus Brain Fog! Or to use the correct term 'Cognitive Dysfunction' I'm still not
100% with it today to be honest. Oh well at least its FRIDAY! Thank the
holy lord up above for that. I think I would have died if it wasn't Friday. Like
actually died.
RIP Faye McInerney -
Cause of Death:
Heart attack caused by shock of alarm going off and seeing it
was a Thursday.
Not sure what the
plan is for this weekend - I am desperate to go 'out-out' but even if I feel
well I should probably just relax. Sami is going to cook for me
tonight which will be nice and then tomorrow, well I did wanna go out with my
friend Lexie but we are going to wait until tomorrow to see how I am and if I'm
up to it then she will probably just come round mine.
Hopefully on Sunday I'll be able to meet up with best friend Sil and go for a carvery. MMMMM Roast potatoes....
Ya can't even plan a
shite when you've got Lupus as I said earlier, one day I'm unable to walk or
think and the next day I'm bouncing around like a kids TV presenter. So
we'll see. Luckily my friends are brilliant and very understanding.
Its starting to sink in that I'm leaving work now. We interviewed this morning and it kind of hit
home that I'm actually leaving. I've had a nice time here over the past 2
and half years....I get on with everyone and its generally a nice place to
work. I have my days when I don't want to be here but mostly I enjoy it.
But I know I am doing the right thing by leaving. I need to rest.
I can only seem to do two full days at the moment then I'm stuck in bed
for two days and so the pattern continues.
I'm looking forward
to getting some kind of life back. I used to be so energetic and always
up for 'doing stuff' now the only thing I wanna do is sleep and eat. So
hopefully it will work out and I will have a better quality of life instead of
just 'existing'.
I hope the good times
are coming!
Here's to the good times!
ReplyDeleteHell to the yeah!!!
ReplyDelete